Showing posts with label Surgery. Show all posts
Showing posts with label Surgery. Show all posts

Monday, 21 March 2016

H.O.P.E

Disclaimer: This blog entry will contain sensitive material relating to sexual assault. If this is likely to be triggering to you, please read with caution.





My specialist appointment to schedule surgery was this morning.
Consent forms signed, all stations go, now all we are waiting for (frustratingly) is a set date.
I'll be running to the letterbox every day until that letter arrives.

So there we go. It's all happening.
With a bit of luck, we're on our way to a pain free existence (even if that is aiming a little too high).
The reality is, who the fuck knows what lay ahead of me. All I can do is smile whenever possible, put on the brave face and keep every crossable extremity crossed for a positive outcome.

Physically? Pain. Yeah, cool. Whatever... It is what it is - I'll deal with it, I've learned to live with it, and whilst it sucks, that's just what I've got to put up with. Fine.


Mentally and emotionally? I cannot do it anymore. I just can't. Or at least, that's certainly how it feels.
I am completely and utterly worn down from it all, and I guess that was one of the biggest considering factors when it came to agreeing to the hysterectomy.
It was also one of the biggest factors working against me.

If I still suffer pain like I am currently experiencing, even despite surgery, am I going to cope with that?




No, but seriously. This is the most stable relationship I've ever had

As I mentioned in my previous post, I've undergone a lot (and I do mean a lot) of therapy sessions with both guidance counsellors and clinical psychologists alike.
For a while there, the clinical psychologist assigned to me by the Pain Management Team through the hospital really became my life line.

Being the perceptive, intuitive being that I am, in the past I've been able to manipulate counsellors by giving them the answers they wanted to hear.
Because I have a reasonably clear understanding as to where a lot of my issues come from and how they effect me, I could (and would) play on that and they'd be satisfied that their job was done.

Wrong.

However, it meant I was out of their offices quick smart, "equipped with the tools necessary to cope" with my stressors.
Wrong. Wrong, wrong, wrong, wrong, wrong.
So fucking wrong.

But I was arrogant and ignorant and didn't give two shits.

Then I met the clinical psychologist, and I swear to God that man was a Brain Ninja of the highest ranking.
Within the first session he had humoured me enough to let me think I knew what I was talking about before swiftly going in for a kill shot with his proverbial ninjatō, straight to my cerebral cortex.

I didn't see it coming, and just like that, he completely broke down my walls.

We did - and continue to do - an extensive amount of work together, a lot of which was met with a certain amount of cynicism.
I can say with hand on heart that there was more than one occasion where I was close to telling him he was barking up the wrong tree and to go fuck himself because I wasn't having a bar of it anymore.
Discomfort will do that to a girl, apparently.

When he first approached me with the idea of embarking on EMDR (not a dance party like I'd hoped), I swear I nearly threw him out his 10th floor window.
As far as I could tell, from what he was saying, this was just glorified hypnosis, and I wasn't particularly keen on the risk of hearing my "safe word" in public and winding up catatonic.

More so than that, it was going to require talking in great depth about traumatic experiences in my life, exploring the feelings associated with them in order to 'unlock, rearrange and reprocess' those experiences so that they no longer had the physiological and psychological impact that they had been having up until that point.
The theory is that, by doing so, whenever the feelings start rising to the surface - for arguments sake, the feelings of self loathing, despair and helplessness experienced during a pain flare - you are able to reach for your 'safe word' and it will trigger a positive reaction/response as opposed to the expected negative.






There is one particular life event which, for all intents and purposes, I am fairly open about.
It's something that makes a lot of people uncomfortable, and for that reason it's not something that ever really gets discussed in any great amount of detail.

For that reason, I had (and still do, to an extent) dealt with it the only way I knew how.
Pushed it to the back of my mind, brushed it off and claimed that it didn't bother me, because if I let it bother me, then I was letting him win all over again.

I don't share this story lightly, nor do I share it for sympathy or any other kind of support, and if you find this upsetting then I apologise in advance.


At the age of 12, I was molested by a trusted male of great influence in my life.
For a long, long time I kept it to myself, choosing only to tell my best friend so that it wasn't my burden to carry on my own.
The fear of the potential consequences suffered by myself and/or anyone else who dare confront the perpetrator was enough for me to vow I would never breath a word of it.

Navigating your way around your abuser on a daily basis is hard, but I never let on that anything happened, and I suppose that was when I really learned how to act - my first foray into martyrdom.
It was my cross to bear. I obviously did something to deserve it, and nobody else should suffer for something I did.


Had things not played out the way that they did, I have no doubt that I would still be carrying that secret with me to this day.
That being said, there came a time where I needed to do whatever I could to protect my loved ones from the risk of falling victim themselves, and thus I made my admission on the proviso that it didn't go as far as police because I was fearful that nearly 4 years later, there would still be a huge amount of fall out and that those closest to me would wind up hurt.

Well, police were involved - obviously and understandaby - and the case wound up going to trial, which was dismissed almost as soon as I got down off the stand.
After four years, a simple 'He-said/She-said' doesn't quite cut it in the court room.
Insufficient evidence and an inability to prove beyond a reasonable doubt that he was guilty meant that the case was thrown out and there would be no further investigation.


Needless to say, this scared the shit out of me.
I felt like I had let everybody down. But worse than that, this disgustingly volatile man was free to roam and had now been tarnished with the 'Pedophile' brush, a label which - conviction or no - would linger like a bad smell.
Not only that, add an aggressive family to the mix, I was pretty terrified of what the implications were going to be.


... I digress.

The reason I share this story in particular is because there have been several studies which support a direct correlation between chronic pelvic pain and sexual abuse victims.

With this knowledge, my psychologist set out to use the EMDR treatment method (most commonly used in PTSD sufferers) to 'unlock' that memory, release it, and disassociate the negative affect.

It's hard to say specifically whether it's had any impact on my feelings associated with that particular incident, as it's not something I do or have paid much mind to.
However, when the same treatment was applied to the thoughts and feelings associated with pain, I can say with absolute certainty that there was a noticeable shift in the way I handle my pain and the feelings I have towards it.

Chronic pain is an insidious beast.
It changes everything about a person.

But, with the right tools and the right support, there is hope.

So Hold On, Pain Ends.


And on that disgustingly cheesy note,

Ovary and out!


S

xx

Tuesday, 15 March 2016

Ctrl+Alt+Del: The Three Finger Salute

It's 3am. Wednesday morning.

I'm angry. So incredibly fucking angry.
And frustrated. Fuck. So inexplicably frustrated.
And upset.
And hurt.
And listless.
And exasperated.
And melancholy
And bitter.
And tired.

I cannot even begin to tell you how tired I am.
But "tired" means so many things when you're 28, staring down the barrel of a majorly life changing surgery, trying to juggle work, study and personal and professional relationships with chronic pain, fatigue and crippling anxiety, depression and self doubt.

I genuinely wish that there was a way to force quit certain programmes which run in the background of our lives, slowing down our operating systems.

Ctrl + Alt + Del > Task Manager > Force Quit.
"Are you sure?"
Yes. A million times yes.


Endo is a cunt of a disease, and as much as I'd like to say it's a disease of the cunt (because wordplay, obviously) unfortunately it's not confined specifically to that area.
Endometriosis is a cruel, pervasive, unrelenting bitch which has been the bane of my existence for the past 8 years.
There is no cure.
And from where I'm sitting right now - on my couch, curled up with my heat pack and crying - there's not a hell of a lot of hope.

I've been fighting for a hysterectomy for the better part of two years.
In those two years I've undergone two other surgeries for excision of endometriosis, cysts and my left ovary.
In those two years I've been admitted to hospital for anywhere from two to eight days at a time, more times than I can count.

In the eight years since I was diagnosed, I've had 6 surgeries, 7 general anaesthetics and if we average my admissions to twice every three months, that's 64 admissions in eight years... and that's not considering the GP visits, trips to the ED and all the other shit that's involved with having a long standing illness.
I don't even want to consider what that all amounts to.

Aforementioned hysterectomy has finally been granted, but only after extensive psychological care.
They're still not convinced it's going to do me any good in terms of my pain, however, have agreed to go ahead with it because they are worried that (and this is verbatim) "if we don't, I'm concerned it will affect your mental health".
Oh. Right. Okay.

I don't know if it's just because of my already fucked up mental state, but it felt like a giant slap in the face.
As if to say "Well Serenity, we're only agreeing to it so that you'll drop it, not because we're convinced that something is wrong in there and that you deserve a chance at being pain free, but so that we can say 'ha-ha, we told you so' once the surgery is over and done with and you're still in pain".

The sting from that proverbial slap is still very much present, and the ringing it's left in my ear has done nothing but get louder and louder and louder as the days go on.

Monday 21st March, 2016.
8:45am.
I'll finally find out when I can be rid of this godforsaken Demon Uterus, Ursula (yeah, just like that evil sea wench from Little Mermaid) and her dumb-ass sidekick, Odette the Ovary and her clinger on, Francine the Fallopian Tube.

Besides, I have this cute wee lady now!
You'd think I'd be excited, and don't get me wrong, I am.
However, I'm a nervous wreck and it's wearing thin.
My pain is flaring as a result, and in a cruel twist of fate, this leads to further nerves and anxiety, which leads to more pain... Which leads to... You get the jist.

What if I get to the appointment and they've changed their mind?
What if I have the surgery and get no relief?
What if I don't recover from the surgery well and wind up worse than before?
What if the pressure is too much and I have to drop out of study? Out of work?
What if it's too much to handle and my relationships suffer?
What if? What if? What if? What if? What if? What if? What if? What if?

"Don't think of the what if's, the ands, the buts and the maybes... Be positive. Look for the silver lining"

Fuck off.
I have. And I do. But every now and then the cracks in the facade begin to show, and you have to forgive a girl for having a breakdown and losing her shit when she's about to sprout facial hair and start sweating like a whore in church, stripping off in the middle of the frozens aisle begging for relief from the hot flushes.

For now there isn't a hell of a lot to do but wait it out and try not to drive myself and those around me crazy.

So that's that.
This is me; in all my angsty, frustrated glory.
Here's to the countdown, the meltdown and all the shit in between.

Ovary and out


S